They are with us 4 hours a day, five days a week for three weeks. One of our sweet babies on this week was.... Sayla.
She is just the sweetest thing! She has the best parents too. They are young and have done such an awesome job remaining dedicated to their little girl and always doing what is best for her.
Having a child with a disability is a really big responsibility. I would say "burden", but I know that the parents don't feel it is an accurate word and having worked with these kids for the past almost 20 years, I know that is NOT the word either. However, the world of parents of "typically" developing kids should know that kids with disablities require a whole new level of patience. There is diapering, potentially forever. There is feeding the child, potentially forever. And there is the daily (many times a day!!) lifting to transfer the kid from bed to wheelchair to bed to tub to carseat, to wheelchair, to bed.....
It is definitely not a job for the weary. I know these parents feel weary sometimes. But I am taking this opportunity to tell any who may read my blog, I admire you. I KNOW the challenges you face and am PROUD of how well you handle it with optimism and total LOVE.
With that said, let's move on to party time.
This is Miss Alyssa. She AND her twin brother, Landon, have significant disabilities. Their parents are some who have gone to extreme lengths to find the funds to provide all the cutting edge treatments to their children. Just to participate in IMOT, they found grants that would allow them to have this three week treatment.
We saw big improvements, and I am proud of the kids and the parents!
If we sang, "If all the raindrops were lemon drops and gum drops...." one time, we sang it 5,000. It was the one song that kept Mr. Landon happy and moving.
Below is Sayla with her mom. She also came up with some very innovative ways to raise the money to participate in the program. From what I hear, they are already fundraising to do it again. See what I mean about dedication!?
It is one of my personal goals to begin a non-profit organization for the kids who are not eligible under their insurance plans to receive such services. I would love to see ANY kid who needed this intense treatment be able to get it!
Anybody out there know much about non-profit status, and then... how to do grant searches and proposals!? I need you!
Our parties are always just a big ol' celebration of the kids and their parents and a time for testimony from the patient, parent, therapist, and all who were around during to process to tell what they have seen most change. It is a time for sweet reflection.
I am working in IMOT this week. I will be working with Christian. Lia, you still read the blog? Surprise! I will be with your little man this week. I look forward to it! Karl always starts every day off with a prayer for our company, our therapists, and names each patient, lifting them up for positive results. How in the world could any patient ever not appreciate that!? I know I appreciate Karl's spiritual guidance in our clinic!
Our mission: To Joyfully use our gifts to brighten the lives of others.
Heeeeeyyyy... I just had a thought. We have tee shirts with this on it, as well as MMPT on the front. Do any of you think you'd like to contribute to some child's IMOT session by buying a tee shirt? That might be a great fundraiser! Just a thought. Let me know so I can have some made up. Being that it is a fundraiser, I think I'd charge about $20. Comment so I know if this is a feasible idea. And I had no idea what I was going to talk about with this post. (Jessi uploaded the pics for me) I think it was a God thing! Happy Sunday!